Toledo Children's Hospital

Sunday morning we woke up to Justin seizing so we called the front desk and asked them to send an ambulance.  It seemed like forever before they got there, but the resort sent security and a medic who gave J some oxygen and the seizing calmed down a little.  Once we got in the ambulance the EMT's drew some blood and determined that J's blood sugar was low so they started an IV and gave him some glucose.

 

After an hour or so he started to perk up but by that point he had been poked and prodded so much that any time anyone came near him he had a major breakdown.  Seeing him all jittery and nervous as if he was hallucinating and seeing things was worse than seeing him seizing at the hotel.  The hospital staff kept looking at us as if I was somehow doing something wrong even though no one came in the room to see what was wrong.  Finally after an hour the Dr. came in, asked if this was normal and when I said no he gave him something to calm him down. 

 

Because of his really low blood sugar (28 when normal is 70) Justin was transferred to Toledo Children's Hospital for further monitoring.  Monday morning we met with the pediatric endocrinologist and he said that J had chronic ketotic hypoglycemia which is common in really small children and he was pretty certain that J had a hormone growth deficiency.  So he ordered the initial screening and told us to follow up with an endocrinologist closer to home.

Because of the seizures we also met with a pediatric neurologist who confirmed that the seizure was provoked by the low blood sugar so he didn't feel there was any neurological disorder.  However, J had a cat scan and EEG to rule that out and both came back normal.

 

Monday afternoon they stopped the IV and after J was able to maintain his blood sugar on his own we were discharged late Monday night.